Exploring the Puzzling World of Rare Diseases

SEPTEMBER 20, 2017

We were proud to sponsor a collaborative art project at this year’s Global Genes Rare Patient Advocacy Summit in Irvine, California. The summit is an educational conference, creating a space for members of the rare disease community to share best practices, create important introductions, and help catalyze powerful collaborations. Attendees share their experience, knowledge, and expertise as conference presenters and or participants.

Our art project gave those with rare diseases, caregivers, scientists and advocates the opportunity to come together to create a giant puzzle—each piece a personal expression about rare diseases.

What they created was more than just a physical work of art — the experience itself left a powerful, lasting impression on everyone who witnessed it.

Hover over each puzzle piece below to see videos from participants, then check out the slideshow to see some of the heartfelt creations.


Now is the Time to Solve the Opioid Epidemic


How To Fix the Diversity Problem in Clinical Research


Inside The Dire Search for a Zika Vaccine