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More Than Meets the Eye: Succeeding with Hidden Disabilities
I grew up with long hair. Not a problem really as it was the late 70s, early 80s. But it was long for a reason—to hide my hearing aids, as if they…
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Bleeding Disorders: A Focus on Hemophilia and von Willebrand Disease
More than three million Americans are living with bleeding disorders. These disorders—including hemophilia, von Willebrand disease, and other rare…
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Rare Disease Day 2021: PRA Shares Perspectives on Trial Innovation and Diversity and Inclusion
At PRA’s Rare Disease Day event, Scott Schliebner, Senior Vice President of the Center for Rare Diseases, called for a change to the outdated…
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Patient-Centric Trial Development Toolkit
Learn more about our practical tools for sponsors, participants and champions of patient-centric trial development and how you can start using them…
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Download the Patient-Centric Trial Development Toolkit
Download 4 practical tools for patient-centric trial development including: Patient Involvement Value Dossier, Patient-Centric Protocol Risk…
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What to ask for when you’re interested in a clinical trial: A guide for rare disease patients and caregivers
Considering a clinical trial? This handy guide will help you ask about the support you’ll receive to make your participation easier and make informed…
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Patient Involvement Value Dossier
Increasing evidence supports that patient involvement in development of clinical trials provides value to sponsors by de-risking trial efficiency
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Patient-Centric Protocol Risk Assessment Tool
Expert-validated tool that enables sponsors to identify potential trial efficiency risks driven by participation burden in any draft protocol
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Rapid Participation Burden Survey
Quick, flexible, validated patient survey tool for rapid feedback on trial-specific participation burden, helps sponsors refine risk analyses and…
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Improving Treatment for Rare Cancers
In recognition of World Cancer Day on February 4th, we explore questions around the latest rare cancer research, treatments, and how to improve…