White Paper
Crossing the Finish Line
Trial participation exposes individuals to pressures that may become hurdles on the way to completing the study. This whitepaper from PRA’s Center…
All Results
White Paper
Newsletter
Industry Watch
This week’s Industry Watch is covering better understanding of disease, from the relationship between COVID-19 and the gut - to the intersection of…
Blog
Shortening the Path to Rare Disease Diagnosis with a Patient-Centric Approach
Many rare disease patients struggle for years before they know what their symptoms indicate, and even longer to find a meaningful treatment. Learn…
Blog
Creating Patient-Centric Trials and Technology for a Better Patient Experience
To commemorate this year’s Patient Experience Week—which celebrates healthcare staff impacting patient experience and provides a focused time for…
Blog
Studying Rare Diseases Helps Advance Common Disease Treatment
Many rare diseases have unexpected connections with common diseases. These relationships can lead us to treatments not only for these rare diseases,…
Blog
More Than Meets the Eye: Succeeding with Hidden Disabilities
I grew up with long hair. Not a problem really as it was the late 70s, early 80s. But it was long for a reason—to hide my hearing aids, as if they…
Blog
Bleeding Disorders: A Focus on Hemophilia and von Willebrand Disease
More than three million Americans are living with bleeding disorders. These disorders—including hemophilia, von Willebrand disease, and other rare…
Blog
Rare Disease Day 2021: PRA Shares Perspectives on Trial Innovation and Diversity and Inclusion
At PRA’s Rare Disease Day event, Scott Schliebner, Senior Vice President of the Center for Rare Diseases, called for a change to the outdated…
Page
Patient-Centric Trial Development Toolkit
Learn more about our practical tools for sponsors, participants and champions of patient-centric trial development and how you can start using them…
Resource
What to ask for when you’re interested in a clinical trial: A guide for rare disease patients and caregivers
Considering a clinical trial? This handy guide will help you ask about the support you’ll receive to make your participation easier and make informed…