We were proud to sponsor a collaborative art project at this year’s Global Genes Rare Patient Advocacy Summit in Irvine, California. The summit is an educational conference, creating a space for members of the rare disease community to share best practices, create important introductions, and help catalyze powerful collaborations. Attendees share their experience, knowledge, and expertise as conference presenters and or participants.
Our art project gave those with rare diseases, caregivers, scientists and advocates the opportunity to come together to create a giant puzzle—each piece a personal expression about rare diseases.
What they created was more than just a physical work of art -- the experience itself left a powerful, lasting impression on everyone who witnessed it.
Hover over each puzzle piece below to see videos from participants, then check out the slideshow to see some of the heartfelt creations.
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The Patient Voice - Engaging Rare Disease Patients to Accelerate Clinical Trial Enrollment
Rare disease patients face a number of unique challenges and complexities of their conditions, Often, this means that their families and advocates…
Spotlight on Amy Raymond: Bulldog and Deep-Diving Thinker
Healthcare intelligence (HQ) is what we call PRA’s unique mixture of intellectual expertise, empathy for the patient experience, and passion for…
Patient-Centric Protocol Risk Assessment Tool
Expert-validated tool that enables sponsors to identify potential trial efficiency risks driven by participation burden in any draft protocol