We were proud to sponsor a collaborative art project at this year’s Global Genes Rare Patient Advocacy Summit in Irvine, California. The summit is an educational conference, creating a space for members of the rare disease community to share best practices, create important introductions, and help catalyze powerful collaborations. Attendees share their experience, knowledge, and expertise as conference presenters and or participants.
Our art project gave those with rare diseases, caregivers, scientists and advocates the opportunity to come together to create a giant puzzle—each piece a personal expression about rare diseases.
What they created was more than just a physical work of art -- the experience itself left a powerful, lasting impression on everyone who witnessed it.
Hover over each puzzle piece below to see videos from participants, then check out the slideshow to see some of the heartfelt creations.
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RARE DISEASES NEWSLETTER Volume 5, January 2017
This quarterly publication will keep you up to date on PRA’s Rare Disease Team focus, achievements, and new initiatives.
The Future of Clinical Trials: Connected and Virtual Approaches for Rare Diseases
Scott Schliebner, Senior Vice President, Center for Rare Diseases at PRA Health Sciences talks about how amore patient-centred approach is needed to…
The Patient Voice: Engaging Rare Disease Patients Improves Clinical Trial Enrollment & Retention
Clinical trials in rare diseases are complex and present unique challenges. However, patients in these trials are very vocal, with caretakers, family…