Wavelength is approaching its first anniversary. We'd like to thank everyone who contributed thoughtful, intelligent, and often heart-warming stories this year -- showing us the people behind the science.
Here are our top five posts from 2017:
Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. In people with CF, a defective gene causes a thick, sticky buildup of mucus in the lungs, pancreas, and other organs. The average life expectancy is 40.
PRA’s Laura Denkers is very familiar with CF. Her twin sons, Riley and Wyatt, were diagnosed at birth. She shares her family’s story.
On September 14 – 16, advocates from across the globe will come together to for the 6th annual RARE Patient Advocacy Summit. This educational conference, by Global Genes, creates a space for members of the rare disease community to share best practices, create important introductions, and help catalyze powerful collaborations. Attendees share their experience, knowledge, and expertise as conference presenters and or participants.
Tragedy is something few us can avoid. The people we love get sick, accidents occur, life – in all its complexities – simply happens. How we channel those experiences differs for each of us.
And sometimes, life’s challenges can set us on a path we never expected.
Jeanne Margavio, a Clinical Research Associate here at PRA, is someone who has faced her fair share of personal challenges. But along the way, she found her path professionally as a nurse and as someone dedicated to clinical research to help others. This is her story.
Progressive and eventually debilitating, Alzheimer’s disease is devastating. Just ask anyone who knows or loves someone with the disease. Sadly, that includes many of us.
PRA’s Dom Moloney lost his grandfather, Arthur, to the disease. And his wife lost her great aunt Milly who was “like a mother to her” when she was younger.
PRA recently sponsored a team from the Centennial School District to provide an innovative forum for students to solve real-world challenges regarding patient awareness and participation in clinical trials.