PRA Health Sciences
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    About PRA

    We are a global healthcare intelligence partner with everything you need to take your assets from concept to compound to cure.

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    Global Locations

    We provide service in more than 90 countries, allowing us to execute every clinical study locally.

    • PRA in China
    • PRA in China (Mandarin)
    • PRA in Japan
    • PRA in India

    Corporate Responsibility

    We’re in the business of improving lives, but drug development isn’t the only way we’re doing it. While bringing new treatments to market is critical to improving lives today.

    • PRA Cares
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  • Our Solutions

    Our Solutions

    We harness a vast array of capabilities and services to custom-build and deliver solutions that maximize your chance at success.

    • Biotech
    • Risk-Based Clinical Development
    • Clinical Diagnostics
    • Site Commercial Solutions

    Integrated Drug Development

    We offer an end-to-end solution to take your product from concept to compound to cure.

    • Early Phase Solutions
    • Phase II-III
    • Real World Solutions
    • State-of-the-art Clinical Facilities
    • PRA's Laboratories for Drug Development

    Embedded Solutions

    We seamlessly integrate the right people, processes, and technologies into your current ecosystem.

    Decentralized Clinical Trials

    Decentralized Clinical Trials

    Using our decentralized clinical trial platform to connect patients, sites and clinical trial teams through world-class data sources and our…

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    • Volunteer for a Study
    • Resources
  • Our Capabilities

    Healthcare Intelligence

    We combine our research expertise, data insights, and patient perspective to insightfully and impactfully solve your clinical development challenges

    • Meet our Experts

    Patient Perspective

    We design our protocols to work for real patients in the real world.

    Research Expertise

    We design the perfect strategy to optimize your outcome.

    • Therapeutic Expertise
    • Global Regulatory Affairs
    • Pharmacovigilance & Patient Safety

    Data Insights

    We merge data, patients, and technology to transform the way research is done.

    • Data Services
    • Data Access
    • Biometrics

    Global Infrastructure

    We have the people, processes, and technologies to move you from concept to compound to cure.

    • Predictivv™
    • Wearables and Virtual Trials
    • Global Logistics
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    • Join Our Team
    • Volunteer for a Study
    • Resources
  • Our Centers

    About Our Centers of Expertise

    We’re helping you solve today’s most complex challenges of drug development with our Centers of expertise.

    The Center for Pediatric Clinical Development


    The Center for Vaccines and Emerging Infectious Diseases


    The Center for Rare Diseases


    The Center for Immuno-oncology, Cellular, and Gene Therapy


    The Center for Global Drug Development


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    • Volunteer for a Study
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  • Our Company

    About PRA

    We are a global healthcare intelligence partner with everything you need to take your assets from concept to compound to cure.

    • Executive Leadership
    • Awards and Recognition
    • Company History
    • Contact
    • Our Values
    • Corporate Responsibility

    Global Locations

    We provide service in more than 90 countries, allowing us to execute every clinical study locally.

    • PRA in China
    • PRA in China (Mandarin)
    • PRA in Japan
    • PRA in India

    Corporate Responsibility

    We’re in the business of improving lives, but drug development isn’t the only way we’re doing it. While bringing new treatments to market is critical to improving lives today.

    • PRA Cares
    • Sustainability
    • Diversity, Equality, and Inclusion

    PRA Health Sciences Insights

    PRA's insights include blog articles, thought leadership, white papers, resources, and other materials generated from our world-class experts.

    • Blog
    • White Papers
    • Resources
    • Contact
    • Join Our Team
    • Volunteer for a Study
    • Resources
  • Our Solutions

    Our Solutions

    We harness a vast array of capabilities and services to custom-build and deliver solutions that maximize your chance at success.

    • Biotech
    • Risk-Based Clinical Development
    • Clinical Diagnostics
    • Site Commercial Solutions

    Integrated Drug Development

    We offer an end-to-end solution to take your product from concept to compound to cure.

    • Early Phase Solutions
    • Phase II-III
    • Real World Solutions
    • State-of-the-art Clinical Facilities
    • PRA's Laboratories for Drug Development

    Embedded Solutions

    We seamlessly integrate the right people, processes, and technologies into your current ecosystem.

    Decentralized Clinical Trials

    Decentralized Clinical Trials

    Using our decentralized clinical trial platform to connect patients, sites and clinical trial teams through world-class data sources and our…

    • Contact
    • Join Our Team
    • Volunteer for a Study
    • Resources
  • Our Capabilities

    Healthcare Intelligence

    We combine our research expertise, data insights, and patient perspective to insightfully and impactfully solve your clinical development challenges

    • Meet our Experts

    Patient Perspective

    We design our protocols to work for real patients in the real world.

    Research Expertise

    We design the perfect strategy to optimize your outcome.

    • Therapeutic Expertise
    • Global Regulatory Affairs
    • Pharmacovigilance & Patient Safety

    Data Insights

    We merge data, patients, and technology to transform the way research is done.

    • Data Services
    • Data Access
    • Biometrics

    Global Infrastructure

    We have the people, processes, and technologies to move you from concept to compound to cure.

    • Predictivv™
    • Wearables and Virtual Trials
    • Global Logistics
    • Contact
    • Join Our Team
    • Volunteer for a Study
    • Resources
  • Our Centers

    About Our Centers of Expertise

    We’re helping you solve today’s most complex challenges of drug development with our Centers of expertise.

    The Center for Pediatric Clinical Development


    The Center for Vaccines and Emerging Infectious Diseases


    The Center for Rare Diseases


    The Center for Immuno-oncology, Cellular, and Gene Therapy


    The Center for Global Drug Development


    • Contact
    • Join Our Team
    • Volunteer for a Study
    • Resources
  • Careers at PRA
  • Investors
  • Press
  • Home
  • Insights

RARE DISEASES NEWSLETTER Volume 17, July 2020

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Welcome to the seventeenth edition of the rare disease newsletter. A few months has changed the world of clinical research into a very different place. This issue includes a summary of work PRA has done to understand the impact of COVID19 on the rare disease patient community and to rare disease research.

Explore related content and topics

  • Rare Disease
  • Study Design
The Future of Clinical Trials: Connected and Virtual Approaches for Rare Diseases resource

The Future of Clinical Trials: Connected and Virtual Approaches for Rare Diseases

Scott Schliebner, Senior Vice President, Center for Rare Diseases at PRA Health Sciences talks about how amore patient-centred approach is needed to…

View Resource
Rare Diseases Newsletter Newsletter

Rare Diseases Newsletter

This quarterly publication strives to keep you up to date on PRA’s Center for Rare Diseases initiatives and activities. Interested in learning more…

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The Center for Rare Diseases Page

The Center for Rare Diseases

We never forget that rare diseases alter entire lives—and we’re committed to changing that. Every day can be delayed, postponed, or canceled when…

Read More

View all related content and resources for Rare Disease

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Interested in Participating in our User Research?

PRA Health Sciences is conducting a user research study to determine the effects of our decentralized services and their impact on existing markets. Your participation in this initial screening will help shape our future goals and objectives moving forward, simply click on the link below to get started.

Any information provided to PRA Health Sciences during the course of this screening will be used for the purposes of this study, and will not be shared or sold to any third parties.