Welcome to the seventeenth edition of the rare disease newsletter. A few months has changed the world of clinical research into a very different place. This issue includes a summary of work PRA has done to understand the impact of COVID19 on the rare disease patient community and to rare disease research.
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The Future of Clinical Trials: Connected and Virtual Approaches for Rare Diseases
Scott Schliebner, Senior Vice President, Center for Rare Diseases at PRA Health Sciences talks about how amore patient-centred approach is needed to…
Newsletter
Rare Diseases Newsletter
This quarterly publication strives to keep you up to date on PRA’s Center for Rare Diseases initiatives and activities. Interested in learning more…
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The Center for Rare Diseases
We never forget that rare diseases alter entire lives—and we’re committed to changing that. Every day can be delayed, postponed, or canceled when…