This year we are excited to be hosting PRA’s first annual World Rare Disease Day event on February 28th, 2019. The event will be held at the PRA office in Blue Bell, PA from 11 AM – 3 PM. Speakers from rare disease patient communities will discuss their journeys and how rare diseases have impacted their daily lives.
RARE DISEASES NEWSLETTER Volume 14, August 2019
Welcome to the fourteenth edition of the rare disease newsletter. This quarterly publication strives to keep you up to date on PRA’s Center for Rare…
Rare Disease Registries: How to Become Part of the Cure
Healthcare Intelligence: Q&A with Laura Iliescu
Laura Iliescu, Manager of Patient Advocacy & Engagement, Center for Rare Diseases, is an adventurer and explorer. She dives into challenges the…