Summary
Clinical trials in rare diseases are complex and present unique challenges. However, patients in these trials are very vocal, with caretakers, family members, and advocates eager to share their experiences. By using actionable strategies to find, listen to, and learn from patients themselves, researchers can include their perspective in study design.
Register to download
The Patient Voice: Engaging Rare Disease Patients Improves Clinical Trial Enrollment & Retention
You may also be interested in:
Blog
Wearable Technology Introduces New Capabilities to Clinical Trials
Wearable devices are an essential part of our everyday lives. If you don’t own an Apple Watch or a Fitbit, chances are you know someone who does.…
White Paper
Multi-Stakeholder Collaborations Can Minimize Barriers & Drive Rare Disease Clinical Programs to Better Patient Outcomes
Conducting clinical trials in rare diseases and advancing research pipelines requires a collaborative, multi-stakeholder approach. This process…
Fact Sheet
Oncology University Fact Sheet
PRA Health Sciences has responded to the industry’s urgent need to find the right CRAs for oncology research with our new Oncology University. This…