Clinical trials can be a source of hope and care for people affected by rare disease.
Many feel it’s worth it, but taking part in a trial is never easy. Knowing what questions to ask can help you figure out:
- how the trial you are considering would fit into your daily life
- what support can be provided to you to make participating easier
- whether participation feels right for you
We hope this guide will give you useful information and confidence as you explore your options!
Rapid Participation Burden Survey
Quick, flexible, validated patient survey tool for rapid feedback on trial-specific participation burden, helps sponsors refine risk analyses and…
Patient-Centric Trial Development Toolkit
Learn more about our practical tools for sponsors, participants and champions of patient-centric trial development and how you can start using them…
Download the Patient-Centric Trial Development Toolkit
Download 4 practical tools for patient-centric trial development including: Patient Involvement Value Dossier, Patient-Centric Protocol Risk…