Clinical trials can be a source of hope and care for people affected by rare disease.
Many feel it’s worth it, but taking part in a trial is never easy. Knowing what questions to ask can help you figure out:
- how the trial you are considering would fit into your daily life
- what support can be provided to you to make participating easier
- whether participation feels right for you
We hope this guide will give you useful information and confidence as you explore your options!
Three Necessary Steps When Designing your New World Protocol
This article explores the design of a protocol that includes decentralized components. After a clinical-trial protocol has been developed, adding…
Rapid Participation Burden Survey
Quick, flexible, validated patient survey tool for rapid feedback on trial-specific participation burden, helps sponsors refine risk analyses and…